This post is going to have a gazillion pictures. We have been busy! (and a blog slacker...)
Carl and I braved the airports and traveled with an infant - on oxygen - and all of his required gear. This is how Carl left me to go park the car. Babies do not travel light!
But we made it to Phoenix and spent 11 wonderful days with our family at the FABULOUS Marriot resort. We spent our mornings lounging, drinking coffee and getting some cousin snuggle time in then went to the pools for the afternoon. Then happy hour came around with dinner by the pool most nights. It was WONDERFUL and exactly what our little family needed after the longest and hardest winter of our lives.
Elise is just the best cousin and the sweetest girl. She will just come up to Baby Brian and rub and kiss his head and say how cute he is. We just love her! And Baby Charlotte, who just couldn't help but beat up on her cousin a little bit. She gets too excited!
Brian did so well traveling and loved getting to see everyone! He is so smiley now and much more interactive. His feeding tube is still out, for over four weeks now. YAY! The scale says he has only gained a few ounces but I think that he just looks great. He is perfectly plump and his 3-6 month size cargo shorts are a bit too tight.
Not too much of a size difference any more! These two are going to be buddies I can tell. One morning Nick, me and my dad went for a hike. It was beautiful and we climbed all the way to the top of Pinnacle Peak. My phone said we burned enough calories for about a two beers...
We have been home for about a week now and getting back into our routine. We saw feeding therapy and they have switched our meetings from every other week to once a month. WOOHOO! Then we had physical therapy as well. Brian needed to focus on tummy time and lifting his head up, Carl and I worked on it every day and the therapists were very impressed with his progress. Our little stinker decided to show off even more...he rolled over for the first time while they were there! That got him very high scores. :) Big improvements are being made over here.
This is Brian's "I love eating prunes" face. So cute!
And to top it all off...Today on his "room air" trial he lasted THE ENTIRE DAY off oxygen. Over ten hours! We even went for a walk with a tube free normal baby. It was amazing and freeing...I felt a little rebellious! Tomorrow our lung doctor is getting a call to see if we can get this weaning going any sooner. We are getting closer and closer to a "normal" baby and we couldn't be happier!
Carl and I braved the airports and traveled with an infant - on oxygen - and all of his required gear. This is how Carl left me to go park the car. Babies do not travel light!
But we made it to Phoenix and spent 11 wonderful days with our family at the FABULOUS Marriot resort. We spent our mornings lounging, drinking coffee and getting some cousin snuggle time in then went to the pools for the afternoon. Then happy hour came around with dinner by the pool most nights. It was WONDERFUL and exactly what our little family needed after the longest and hardest winter of our lives.
Elise is just the best cousin and the sweetest girl. She will just come up to Baby Brian and rub and kiss his head and say how cute he is. We just love her! And Baby Charlotte, who just couldn't help but beat up on her cousin a little bit. She gets too excited!
Brian did so well traveling and loved getting to see everyone! He is so smiley now and much more interactive. His feeding tube is still out, for over four weeks now. YAY! The scale says he has only gained a few ounces but I think that he just looks great. He is perfectly plump and his 3-6 month size cargo shorts are a bit too tight.
The Brians liked to take pool side naps in the afternoon. Grandpa was tired from his 5 am tee time and Baby Brian thought he was just the comfiest thing.
Not too much of a size difference any more! These two are going to be buddies I can tell. One morning Nick, me and my dad went for a hike. It was beautiful and we climbed all the way to the top of Pinnacle Peak. My phone said we burned enough calories for about a two beers...
We flew out a day after the rest of the family. So we spent Mother's Day at Canyon Lake. It was a fun little side trip for us to a place that neither of us had been before. Brian liked it too and was wearing LOTS of sunscreen.
We have been home for about a week now and getting back into our routine. We saw feeding therapy and they have switched our meetings from every other week to once a month. WOOHOO! Then we had physical therapy as well. Brian needed to focus on tummy time and lifting his head up, Carl and I worked on it every day and the therapists were very impressed with his progress. Our little stinker decided to show off even more...he rolled over for the first time while they were there! That got him very high scores. :) Big improvements are being made over here.
This is Brian's "I love eating prunes" face. So cute!
And to top it all off...Today on his "room air" trial he lasted THE ENTIRE DAY off oxygen. Over ten hours! We even went for a walk with a tube free normal baby. It was amazing and freeing...I felt a little rebellious! Tomorrow our lung doctor is getting a call to see if we can get this weaning going any sooner. We are getting closer and closer to a "normal" baby and we couldn't be happier!
