We have had quite the busy week! But first, a picture :)
This is our little man last Friday. Once a week I always change out his nasal cannula and feeding tube for new, clean ones. Friday is the day. And I usually pick a cute outfit and do a little photo shoot while he is tube free. He was SO CUTE and content. Brian did so well with his oxygen off, he lasted about 20 minutes and was maintaining his oxygen saturations in the 90s (that's perfect) for the whole time. We even managed a few facetime chats to show off his tube free face.
Here's our little wiggle worm this afternoon. This is outfit #4 people! He goes through them like crazy lately, for multiple different reasons... I don't really mind, it lets me use all the outfits we got for him, and baby laundry really is the best kind.
We've been busy with our first round of therapist visits. Last Thursday we have a Physical Therapist and an Occupational Therapist come to our house to evaluate our little buddy. Overall, they think he is doing great! He tested right on for a normal one month old!! He was behind on some things, but ahead on others. They were very impressed with his head control and could tell that we have been doing our exercises every day. So that is great news! They will continue to come to our house and visit our little guy once a month to watch his progress.
On Monday, we had a Speech Therapist come to our house. Their job is to watch his feeding and see how he is tolerating everything. Obviously our chubby little man is getting his food, but we would like more of it to go down by mouth and less and less through his feeding tube. He loves to eat but has been dealing with some pretty significant reflux. We started up on some meds to hopefully help and we will get something called a Swallow Study done. Brian and I will go to the hospital and have him eat in the radiology room with some special formula that will allow them to see if he is spitting up or having any of the food go into his lungs. Hopefully we are all good, but better safe than sorry.
We also had our second doctors visit on Tuesday! Brian is up to a hefty 10 pounds 14 oz. WOW! That is 10x his birth-weight, people! Our Dr was very happy with his progress. Based on how well he has grown this last month, if he continues on this trend he will physically be caught up to "normal" by his actual 1 year birthday. So, if things go according to plan, Charlotte and Brian will look the same by Labor Day. To keep up with this crazy growth curve, Brian gets fortified breast milk and needs to eat 3oz every 3 hours to get the needed calories. That is alot to eat for a little 7 week old baby! So we let him take what he likes from the bottle first, then continue to put the remaining down his feeding tube. We hope that he needs that tube less and less, our Dr said that we have about 6-8 more weeks for him to totally catch on before we start talking about placing a G-tube. That's a surgery that would involve putting a tube right into his stomach for him to get food that way. Let's hope that doesn't happen!
Carl and I are enjoying our time with sweet Brian. He is much more alert and interactive now. It's so fun! He's constantly looking around lately and seems very curious. It is definitely a fun, new stage for us. He is on the brink of smiling on purpose! Not quite yet, but I think we are getting there. I have one more week home then I head back to work next Friday night. I've had a whole six months off, my work has been awesome. At least I only need to do one day a week, and an 8 hour shift at that! And then Carl is able to stay home and take care of our little buddy so there will be no day care for him. We don't want any extra germs around here. :)
Sweet boy fell over, and didn't even mind. |
That bath pic with his tummy rolls is the BEST!!!! What a cutie! Glad to hear the great updates!
ReplyDeleteLove his little cheeks! Thanks for letting us know how he's doing!
ReplyDeleteGlad you posted, sounds like he is doing so great!!!
ReplyDeleteWhat a precious, precious little boy. I can't believe how big he is--and so handsome! Love his big eyes and chubby cheeks.
ReplyDeleteOh my goodness!! The chubby man in the tub!!
ReplyDeleteBeautiful baby boy!
ReplyDeleteOh he is so cute! That bath picture cracks me up every time. Miss you!
ReplyDeleteWe need a new post with pics to see of your cutie! 😄
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